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Wow…How time flies! July 26, 2011

Posted by nightowlza in Alzheimer, Alzheimer's and children, Alzheimer's Disease, Alzheimer's living with children, Alzheimer's New to this, Caring for Alzheimer's, Dementia, Living with alzheimer's, Memory Loss, Parents with Alzheimer's.
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It has been over a year since I last wrote on the blog.  Where I used to love writing the blog and telling everyone about Rene I now find it depressing more than anything else.

Rene is now a shadow of her former self.  I think she weighs less than 35kg (the last weight we got when we weighed her about a year ago).  Its impossible to now get her on a scale to weigh her.

Rene cannot stand or walk one step anymore.  Her hands are now totally useless as the brain is not allowing her to open her fingers at all.  This has caused major problems because the hands now get infected easily as the fingers dig into the palms and they bleed a lot.  The tips of the fingers are all raw and the palms are broken open.  It worries me that there is maybe something we can do about this but have had a physiotherapist, an occupational therapist and two doctors here to see her hands and they all say we are doing all we can for her.  We soak her hands in salt water every day for 10 minutes and then we have to pry those hands open to try and dry them well and put ointment and gauze in them.  Rene screams from pain every day and we feel so sorry for her but there is nothing else we can do.  The doctor said she can scream from pain for 5 minutes but if we don’t do the hands she would probably lose them.

Jenny, the carer, bumped mom’s leg against the wheelchair and the leg burst open.  We had the doctor here who thought she would have to go into theatre.  I went ballistic!!  Anyway…the doctor saw I was not handling this very well and went to chat to her partner who knows mom best.  He phoned to tell me that I can bring her into his surgery and he would stitch her up.  She had not been in a car since Selwyn’s funeral last year January.  What a mission that was to get her into the car but we managed.  The doctor took one look at her and said that her skin is too thin to stitch up.  Duh!!  Anyway he put some plasters on that keep the skin together which we will have taken off on Thursday which will be 2 weeks.  We have not let her get out of bed for 2 weeks to keep the pressure off the leg.  She does not ask to get out of bed and I just hope she wants to get out once this is all over.

Rene seldom talks anymore and when she does she seldom makes sense.  She lies in bed for hours on end staring at the ceiling.  Even when she sits in her wheelchair she stares at the ceiling.  She is not interested in visitors anymore and basically ignores everyone.

Very few visitors come to see her.  Its basically my brother Alan, nephew Brett with his daughter Tyla and my friends Fransie and Allan.  The phone calls have stopped except for Christine that phones almost daily!

Mom is still happy and comfortable besides the hand.  She never gives us a moment’s problems.  The carers on the other hand are giving endless hassles but I suppose this is to be expected.

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